I am the father of a special needs little boy, with significant intellectual and developmental disabilities. Joshua has been diagnosed been a rare chromosome deletion. He is the sweetest most innocent soul that I will ever know.
I also have the wonderful privilege of being one of several Lightkeepers at the St. Augustine Lighthouse and Maritime Museum. I guess it could be said that there are TWO lights in my life.
For more information on my son’s condition, please visit the Phelan-McDermid Syndrome website. You can also visit my personal VSCO Page for a beautiful gallery of photographs dedicated to the life of my son.